Hypothalamic Obesity Resources | Marci Serota, RDN

My Favorite Resources for Hypothalamic Obesity

As parents of children with hypothalamic obesity, or as patients, we need to share resources! Resources to educate ourselves, to share with our physicians, and to make us feel less alone in fighting this battle. Knowledge is power. This list is not complete, and new studies are being published all the time. If you have a great resource you’d like to see posted here, please leave me a comment below!

Resources for Patients

• Hope for HO, Blog by Eugenie Hsu, Ph.D
• Raymond A. Wood Foundation
• Hungry for Solutions, by Marci Serota, RDN

Resources for Healthcare Professionals

• Neuroendocrine Resources for Professionals, Children’s Hospital of Philadelphia
• Hungry for Solutions, by Marci Serota, RDN
• Medications that May Help Treat Hypothalamic Obesity, What does the Literature Say? by Marci Serota, RDN
• Oxytocin and Naltrexone Successfully treat hypothalamic obesity in a boy post-craniopharngioma resection- A case report

Hypothalamic Obesity Specialists – Pediatric Endocrinology

• Shana McCormack, MD, MTR, Children’s Hospital of Philadelphia, Pediatric Neuroendocrinology
• Craig Alter, MD, Children’s Hospital of Philadelphia, Pediatric Neuroendocrinology
• Mary Abuzzahab, Children’s Minnesota, Pediatric Endocrinology
• Jennifer Miller, MD, University of Florida, Gainesville, Pediatric Endocrinology
• Christian, Roth, MD, Seattle Children’s Hospital, Pediatric Endocrinology
• VIncent Horne, MD, Texas Children’s Hospital, Houston, TX, Pediatric Endocrinology

Endocrinologists with Experience in Treating Hypothalamic Obesity *

*this list was compiled based on HO parent recommendations

• Soumya Adhikari, MD, Children’s Health Dallas, Pediatric Endocrinology
• David Feinstein, MD, Private Practice, Dallas, TX, Adult Endocrinology
• Dr Irene Hong McAtee, MD, Vanderbilt, Pediatric Endocrinology
• Dr Jackson Smith, MD, University of Kentucky hospital, Pediatric Endocrinology
• Dr Jill Hamilton, MD, Sick Kids Hospital,Toronto ON, Pediatric Endocrinology
• Dr. Laurie Cohen, MD, Dana Farber, Boston Children’s Hospital, Pediatric Neuroendocrinology

Pediatric Bariatric Surgeons

• Thomas Inge, MD, Children’s Hospital Colorado, Denver, Bariatric Surgery

Registered Dietitians Specializing in Hypothalamic Obesity

• Marci Serota, RDN, Private Practice, Dallas, Texas

Clinical Trials Hypothalamic Obesity

• Intranasal Oxytocin, Children’s Hosptial of Philadelphia-CLOSED
• Exantide Children’s Hospitals and Clinics of Minnesota, Seattle Children’s, Vanderbilt